Spooniversity Blog
Written by people who live it. No toxic positivity. No advice that assumes a fully-functioning body. Just honest, practical writing for people navigating the real thing.
The homepage used to describe a creator marketplace that did not actually exist yet. This week it became real. Building it surfaced a bug that would have quietly rejected every audio-only submission.
Read article →Chronic illness reshapes identity in ways that are real and serious. The question isn't whether to let illness be part of who you are — it's how to make sure it isn't all of who you are.
Getting disability benefits when your condition is invisible, variable, or poorly understood is one of the hardest administrative processes chronically ill people face. Here's how to approach it.
Remote work promised flexibility — but the standard home office setup still assumes a body that cooperates. Here is what genuinely helps when yours doesn't.
Medical gaslighting isn't just a bad appointment. It's a pattern. A system. A design failure. Here's what it did to me, what it does to millions of chronically ill people, and what I'm trying to do about it.
Spoon theory tells you what energy depletion feels like. Energy accounting tells you what to do about it. A practical framework for managing variable capacity.
Patient advocacy is a real profession with growing demand. Here's what patient advocates actually do, who they help, and why chronically ill people have a head start.
We had a €749 Patient.Pro cohort ready to launch. We killed it 6 days before go-live. Here's exactly why — and what we learned about pricing for people with variable income and variable capacity.
Most online education is priced for people who don't have chronic illness. We built something different. Here's how Three Doors works, why we made these choices, and what it means for you.
Chronic illness forces many people out of careers they built. Here's a practical look at how to re-enter the workforce, reframe your experience, and build something that works for your actual body.
Chronic illness is expensive — in ways that go far beyond medical bills. A frank accounting of the full cost: financial, professional, social, and temporal, and why it matters to name it accurately.
These four conditions affect millions of people globally, are frequently misdiagnosed or dismissed, and are still poorly understood by most clinicians. A plain-language explanation of what they are and why they're so hard to get diagnosed.
Most online learning platforms are just lectures on a screen. Here's what actually has to change for chronically ill people to be able to learn — and what's finally being done about it.
Chronic illness forces you to learn differently — shorter windows, higher selectivity, lower tolerance for the irrelevant. That isn't only a limitation. In some ways, it turns out to be a better way to learn.
Having an invisible illness and a job — or trying to keep one — involves navigating legal rights, disclosure decisions, and a workplace culture that may not be built for you. A practical guide.
Being dismissed, disbelieved, or told it's anxiety when it isn't — medical gaslighting is widespread and its effects are serious. Here's how to recognise it and what to do.
Working at less than full capacity isn't giving up. For people with chronic illness, consistently staying within your energy envelope is one of the most effective management strategies available. Here's the evidence and the practice.
Most symptom tracking is too vague to be clinically useful. Here's how to build a documentation record that captures the right information — and changes what happens in medical appointments.
Brain fog is one of the most common and most dismissed symptoms of chronic illness. Here's what's actually happening neurologically, why it's not just about sleep, and what actually helps.
A practical communication framework for chronically ill patients who are tired of being dismissed, disbelieved, or managed out of the room.
Post-exertional malaise is not tiredness. It's a systemic crash that follows exertion and can last days or weeks. Here's what it actually is, why it matters for everything from pacing to diagnosis, and why most standard medical advice makes it worse.
Spoon theory changed how millions of chronically ill people describe their lives. Here's what it gets right, what it misses, and what to do when the metaphor breaks down.
Spooniversity is a school for chronically ill people. Every course is free to read. Certificates from €19, once you finish.